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11th Puttin' for PKU

Please join us Thursday, September 15, 2011 for our 18 hole golf event.  This scramble style outing has proven to be great fun and a great way to support PKU in Minnesota.  We invite you to golf, join us for dinner, or volunteer - please check our events page for more information. 

**You can register now our registration page.**

Cover of Low Protein Food List for PKU bookLow Protein Food List for PKU

The PKU Clinic at the University of Minnesota Amplatz Children's Hospital has 75 copies of the Low Protein Food List for PKU (third edition - orange) for their clinic patients.  Books will be distributed on a first come/first serve basis to those attending clinic while supplies last. 

Calendar

The theme for the 2012 Calendar will be "These Are a Few of My Favorite Things" - send in your photos in now!  See the Calendar page for more info.

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preview image of MDH Diet Exemption CardMinnesota Department of health Diet Exemption Card. 

 

 

 

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Legislation: 

Although Minnesota has good laws pertaining to food and formula coverage for PKU, increasingly companies are choosing "self insured" options which exempt them from state law; military personnel and federal employees are also often not covered.  The NPKUA, of which the Minnesota PKU Foundation is a member organization, is promoting the Medical Foods Equity Act.  This act, when passed, will assure coverage of foods and formula for everyone including self insured plans, military plans, and federal plans.  To find out more on how to help this federal legislation go to the NPKUA site.  Currently it has a handful of bipartisan supporters in the house and senate.

Our Mission:

The Minnesota PKU Foundation is a nonprofit charity established to promote research and the welfare of patients with PKU and their families. The programs and services offered through the Foundation are the result of a very active patient/family constituency and Board of Directors.

 

Welcome

This site is sponsored by the Minnesota PKU Foundation to provide information and support to families in Minnesota affected by Phenylketonuria (PKU).  Please browse to find out more about PKU, current research, and events sponsored by the Foundation.