- MN PKU Home
- About PKU
- Diet Tips and Information
- Recipe
- Breads, crusts, and pastry
- Desert
- Apple Crisp
- Almondless Crunch
- Almost Better than Ice Cream
- Carrot Cake
- Cheesecake
- Chocolate Waffles
- Cinnamon-Crunch Peach Sundae
- Cocoa Drop Cookies
- Cookies-n-Cream Cupcakes
- Cranberry-Pear Sauce
- Cream Filling for Cupcakes
- Creepy Crawly Spider Cookies
- Easy Sherbet
- Holiday Candy
- Honey-Roasted Plums
- Pina Colada Pie
- Pizzelle
- Pumpkin Cookie
- Rhubarb Custard Cake
- S'Mores
- Drinks
- Main Course
- Alfredo Pasta Sauce
- Busy Morning Eggs - 2 Ways
- Butternut Squash and Low Protein Pasta
- Cheese Sauce for Pasta
- Creamy Garlic Pasta Sauce
- Emmalee's Favorite Pizza
- Fast & Easy Alfredo Sauce
- Garden Fresh Tomato Spread
- Hearty Grilled Vegetable
- Josh's Taco Meat
- Lemon Chive Pasta and Peppers
- Macaroni and Cheese
- Meatballs
- Mini Tacos
- Mixed Vegetable Salad
- Parma Rosa Pasta Sauce
- Quiche Paolella
- Sauteed Noodles and Vegetables
- Sloppy Jo
- Super Bowl Hoagie
- Snacks
- Soup
- Events
- Resources
- About the Foundation
- Contact Us
Welcome
This site is sponsored by the Minnesota PKU Foundation to provide information and support to families in Minnesota affected by Phenylketonuria (PKU). Please browse to find out more about PKU, current research, and events sponsored by the Foundation.
Calendar
The theme for the 2011 Calendar will be PacK'in Up - send in your photos in now! See the Calendar page for more info.
Upcoming Events
This summer and fall is an exciting time with a combination of the Summer picnic at the Saints Game in August in St. Paul and the 10th Annual Puttin' for PKU coming in September to Jordan, MN. Online registration is open for the Saints game through Sunday July 25, 2010 and Puttin' for PKU. To be notified about our events, join our mailing list below.
Study:
Dr. Chang is looking for adults with PKU for a paid study, see the resources section on research for more information. $50 will be paid to qualifying participants.
Legislation:
Although Minnesota has good laws pertaining to food and formula coverage for PKU, increasingly companies are choosing "self insured" options which exempt them from state law; military personnel and federal employees are also often not covered. The NPKUA, of which the Minnesota PKU Foundation is a member organization, is promoting the Medical Foods Equity Act. This act, when passed, will assure coverage of foods and formula for everyone including self insured plans, military plans, and federal plans. To find out more on how to help this federal legislation go to the NPKUA site. Currently it has a handful of bipartisan supporters in the house and senate.
Our Mission:
The Minnesota PKU Foundation is a nonprofit charity established to promote research and the welfare of patients with PKU and their families. The programs and services offered through the Foundation are the result of a very active patient/family constituency and Board of Directors.
