The Minnesota PKU Foundation is a nonprofit charity focused on the welfare of individuals with PKU and their families. The programs and services offered through the Foundation are the result of a very active patient/family constituency and Board of Directors.
Once diagnosed (usually within 3 to 5 days of birth), a newborn is referred to a PKU specialist. In Minnesota, PKU patients may be referred to the University of Minnesota PKU Clinic, or the Mayo Clinic. The children are placed on a highly restricted and carefully monitored diet including a protein supplement. The supplement comes in many forms but a formula is the most common treatment for children with PKU.