Resources
Information
Teacher's Guide to PKU (Texas Dept. of Health)
The Teacher’s Guide to PKU is a document outlining basic PKU support information.
Babysitter's Guide to PKU (University of Washington)
The Babysitter’s Guide to PKU is geared towards a teen age babysitter to help them understand the needs of a PKU child in their care.
Information collected by The Travel Center travel agents related to tackling a Disney vacation with a special diet.
Nutrition CardsCards available from Nutricia to help with education, food records, or meal planning
USDA School Lunch Program - Accomodating Special Dietary Needs
Information from the USDA regarding school lunch programs and accomodating special dietary needs. PKU is specifically listed on page 3 of the document. Specific interpretation in the state of Minnesota falls to the Minnesota Department of Education.
You and PKUA book for children to learn about aspects of PKU including phe, blood draws, and "super milk" Geared to children aged 3 to 8. Offered by National PKU News.
Conferences
An International PKU Teen and Adult conference was held August 2008 in Rosemont, Illinois. Several teens and adults attended…. We are looking for a story from someone who attended.
Support Groups
Minnesota PKU Foundation on Facebook
BabyCenter PKU and low protein support group
The Metabolic Disorders site is geared towards mothers with little ones with PKU and other disorders and expectant and new mothers with PKU. It is a place to chat and share information.
ListServe
An e-mail based support group. Web site link above will give instruction on how to join.
MySpecialDiet.com
PKU bulletin board support group for individuals with PKU or for those caring for individuals with PKU
PKUteens
A bulletin board site for teens with PKU - it is based in the UK
