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Creative Cooking is being sponsored by BioMarin.  The class will feature cooking and nutritional tips and a presentation on ADHD and executive function in PKU.  Space is limited - see our events page for more information.

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Save the Date!

 Summer Picnic: Saturday Aug. 11, 2012 3:30 PM at Como Park in St. Paul, MN

  


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Making PKU History

NATIONAL PKU ALLIANCE

2012 CONFERENCE JULY 26 – 29, 2012 -

THE CROWNE PLAZA • CHERRY HILL New Jersey

Sponsorship to cover travel or admission costs may be available - see the Events page for more information.

Looking for a PKU friendly summer adventure for your family or your kids? In addition to the conference, there are a wide variety of family and summer camps available. The NPKUA compiled a list and we posted it on our Events page.

preview image of MDH Diet Exemption CardMinnesota Department of health Diet Exemption Card.

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Low Protein Food List for PKU

Cover of Low Protein Food List for PKU bookThe PKU Clinic at the University of Minnesota Amplatz Children's Hospital has 75 copies of the Low Protein Food List for PKU (third edition - orange) for their clinic patients. Books will be distributed on a first come/first serve basis to those attending clinic while supplies last.

Legislation: 

Although Minnesota has good laws pertaining to food and formula coverage for PKU, increasingly companies are choosing "self insured" options which exempt them from state law; military personnel and federal employees are also often not covered.  The NPKUA, of which the Minnesota PKU Foundation is a member organization, is promoting the Medical Foods Equity Act.  This act, when passed, will assure coverage of foods and formula for everyone including self insured plans, military plans, and federal plans.  To find out more on how to help this federal legislation go to the NPKUA site.  Currently it has bipartisan supporters in the house and senate.

Welcome

This site is sponsored by the Minnesota PKU Foundation to provide information and support to families in Minnesota affected by Phenylketonuria (PKU). Please browse to find out more about PKU,  research, and events sponsored by the Foundation.

Our Mission:

The Minnesota PKU Foundation is a nonprofit charity established to promote research and the welfare of patients with PKU and their families. The programs and services offered through the Foundation are the result of a very active patient/family constituency and Board of Directors.

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