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About the MN PKU Foundation

The Minnesota PKU Foundation is a nonprofit charity established in 1984 to promote research and the welfare of PKU patients and their families. The programs and services offered through the Foundation are the result of a very active patient/family constituency and Board of Directors.  The foundation is comprised of parents, grandparents, health care providers and other friends of the PKU Community.  Through dedication and support of these individuals, the foundation is able to continue to raise money and support the community.

See our events page for 2010 events and educational opportunities.

Plans will soon be underway to produce the 2011 Calendar!

Success in 2008 and 2009

Money raised by the 2009 Motorcycle Rally, Puttin' for PKU, and other fundraising is put to work to support families in Minnesota.  Highlights included:

  • Co-sponsoring the symposium in St. Paul with Biomarin.
  • Co-sponsoring a cooking class with Nutricia for parents with very young children with PKU.
  • Assisting families in attending the PKU Teen and Adult conference in Illinois.
  • Assisting families in attending a cooking demonstration in Denver, Colorado
  • Assisting families in getting phe counting books, cookbooks, and scales to support the diet.
  • Designing and launching this web site
  • Supporting National PKU News
  • Producing and mailing calendars to families.
  • Sponsoring the PKU Pool Party for family networking.
  • Joining and assisting the National PKU Alliance (NPKUA)