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About the MN PKU Foundation

The Minnesota PKU Foundation is a nonprofit charity established in 1984 to promote research and the welfare of individuals with PKU and their families. The programs and services offered through the Foundation are the result of a very active patient/family constituency and Board of Directors.  The foundation is comprised of parents, grandparents, health care providers and other friends of the PKU Community.  Through dedication and support of these individuals, the foundation is able to continue to raise money and support the community.

View Location of our families in a full screen map

See our events page for 2011 events and educational opportunities.

Success in 2010 and 2011

Money raised by the 2010 Motorcycle Rally, Puttin' for PKU, and other fundraising is put to work to support families in Minnesota.  Highlights included:

  • Co-sponsoring the symposiums in Minneapolis and around the state.
  • Co-sponsoring a summer cooking class with BioMarin.
  • Assisting youth in attending summer camp for individuals with PKU.
  • Assisting families in getting phe counting books, cookbooks, and scales to support the diet.
  • Maintaining this web site
  • Supporting National PKU News
  • Producing and mailing calendars to families.
  • Sponsoring the PKU Pool Party for family networking.
  • Co-sponsoring the PKU picnic at the Saints with BioMarin.
  • Joining and assisting the National PKU Alliance (NPKUA).  Through our affiliation with the NPKUA, we can pool our resources and fund research to find better treatment and eventually a cure for PKU.